In recognition of World Sickle Cell Day, Cayenne Wellness Center and the Global Alliance of Sickle Cell Disease Organizations (GASCDO) will host the 7th Annual 24-Hour World Sickle Cell Day Marathon on June 19, 2026. The free virtual event, centered around the theme "Closing the Survival Gap: Equity in Sickle Cell Care," aims to address persistent disparities in access to diagnosis, treatment, mental health services, research opportunities, and quality care experienced by individuals living with sickle cell disease worldwide.
The 24-hour marathon will stream live and bring together patients, caregivers, advocates, healthcare professionals, researchers, policymakers, and community leaders from across the globe. Sessions will cover topics including healthcare equity, mental health, caregiver experiences, legislative advocacy, blood donation and stem cell registries, data collection, media representation, and innovations in sickle cell care.
Featured sessions include "Warrior Speaks," featuring individuals living with sickle cell disease sharing their personal journeys; "SCD Shaping Siblings," a panel exploring how sickle cell disease impacts siblings and family dynamics; "The Role of a Caregiver and the Fight Against SCD," highlighting caregiver voices; "Mental Health and Sickle Cell Disease," examining the emotional impact of chronic illness; and "Closing the Survival Gap in Sickle Cell Disease: From Crisis Care to Chronic, Continuous Care," featuring international leaders in sickle cell medicine and advocacy. Community engagement activities, support groups, author conversations, and patient storytelling sessions are also planned.
"This event was created to ensure that people affected by sickle cell disease know they are not alone," said Dr. Carolyn Rowley, Founder and Executive Director of Cayenne Wellness Center. "By bringing together voices from across the globe, we can elevate awareness, strengthen advocacy efforts, and push for the equitable care every person living with sickle cell disease deserves."
The event is supported by sponsors including Advocate Sponsor Agios Pharmaceuticals and Community Sponsor Fulcrum Therapeutics. Registration is free and open to the public at https://rebrand.ly/wscd2026. More information is available on the event website at https://sicklecellday.com.
